Skip to main content
Independent and nonpartisan. SaveYourState is a civic information resource. It is not a government website and is not affiliated with any government agency, party, or campaign.

New York · 2025 Regular Session · Bill

S 6413: Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry

In committee Official data

  1. Introduced
  2. In committee
  3. Passed one chamber
  4. Passed both chambers
  5. Enacted

Last official action: ·Record last updated:

Plain-language summary

S 6413 is a bill introduced in the New York Senate on March 13, 2025. According to its official title, it concerns: Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry. Primary sponsor: Jessica Scarcella-Spanton (Democratic). It lists 1 additional sponsor. Most recent recorded action (June 10, 2025): SUBSTITUTED BY A7845.

Generated automatically from the official title, sponsor list, and status record only. It does not characterize the bill’s purpose or effects. How summaries are written

Official summary

Abstract published by the legislature (via Open States). Text as published by the legislature; reproduced verbatim.

Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.

Sponsors

Sponsors by party (alphabetical): Democratic 2

NameRolePartyChamberDistrict
Jessica Scarcella-SpantonPrimary sponsorDemocraticSenate23
Pat FahyCo-sponsorDemocraticSenate46

“Support” is shown only as formal sponsorship recorded by the legislature. Roll-call votes are available on the official bill page.

Recent official actions

  1. SUBSTITUTED BY A7845
  2. ORDERED TO THIRD READING CAL.1540
  3. COMMITTEE DISCHARGED AND COMMITTED TO RULES
  4. REPORTED AND COMMITTED TO FINANCE
  5. REFERRED TO HEALTH

Sources

  1. Open States / Plural (data from the official legislature website)
  2. Official legislature source