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New York · 2025 Regular Session · Bill

S 1287: Establishes the rare disease advisory council

Passed both chambers Official data

  1. Introduced
  2. In committee
  3. Passed one chamber
  4. Passed both chambers
  5. Enacted

Last official action: ·Record last updated:

Plain-language summary

S 1287 is a bill introduced in the New York Senate on January 9, 2025. According to its official title, it concerns: Establishes the rare disease advisory council. Primary sponsor: Roxanne Persaud (Democratic). It lists 14 additional sponsors. Most recent recorded action (March 10, 2026): RETURNED TO SENATE.

Generated automatically from the official title, sponsor list, and status record only. It does not characterize the bill’s purpose or effects. How summaries are written

Official summary

Abstract published by the legislature (via Open States). Text as published by the legislature; reproduced verbatim.

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Sponsors

Sponsors by party (alphabetical): Democratic 5 · Democratic/Working Families 4 · Republican/Conservative 5

NameRolePartyChamberDistrict
Roxanne PersaudPrimary sponsorDemocraticSenate19
Joe AddabboCo-sponsorDemocraticSenate15
Jake AshbyCo-sponsorRepublican/ConservativeSenate43
Cordell CleareCo-sponsorDemocraticSenate30
Leroy ComrieCo-sponsorDemocraticSenate14
Jeremy CooneyCo-sponsorDemocratic/Working FamiliesSenate56
Nathalia FernándezCo-sponsorDemocraticSenate34
Patrick GallivanCo-sponsorRepublican/ConservativeSenate60
Pam HelmingCo-sponsorRepublican/ConservativeSenate54
Brad Hoylman-SigalCo-sponsorNot applicable (committee)——
Jack MartinsCo-sponsorRepublican/ConservativeSenate7
Rachel MayCo-sponsorDemocratic/Working FamiliesSenate48
Dean MurrayCo-sponsorRepublican/ConservativeSenate3
Gustavo RiveraCo-sponsorDemocratic/Working FamiliesSenate33
Lea WebbCo-sponsorDemocratic/Working FamiliesSenate52

“Support” is shown only as formal sponsorship recorded by the legislature. Roll-call votes are available on the official bill page.

Recent official actions

  1. RETURNED TO SENATE
  2. PASSED ASSEMBLY
  3. ORDERED TO THIRD READING CAL.47
  4. SUBSTITUTED FOR A1296B
  5. REFERRED TO WAYS AND MEANS
  6. DELIVERED TO ASSEMBLY
  7. PASSED SENATE
  8. ADVANCED TO THIRD READING
  9. 2ND REPORT CAL.
  10. 1ST REPORT CAL.283
  11. PRINT NUMBER 1287B
  12. AMEND AND RECOMMIT TO HEALTH

Showing 12 most recent of 26 actions. Full history

Sources

  1. Open States / Plural (data from the official legislature website)
  2. Official legislature source