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New York · 2025 Regular Session · Bill

A 1296: Establishes the rare disease advisory council

In committee Official data

  1. Introduced
  2. In committee
  3. Passed one chamber
  4. Passed both chambers
  5. Enacted

Last official action: ·Record last updated:

Plain-language summary

A 1296 is a bill introduced in the New York House on January 9, 2025. According to its official title, it concerns: Establishes the rare disease advisory council. Primary sponsor: Amy Paulin (Democratic). It lists 27 additional sponsors. Most recent recorded action (March 10, 2026): SUBSTITUTED BY S1287B.

Generated automatically from the official title, sponsor list, and status record only. It does not characterize the bill’s purpose or effects. How summaries are written

Official summary

Abstract published by the legislature (via Open States). Text as published by the legislature; reproduced verbatim.

Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.

Sponsors

Sponsors by party (alphabetical): Democratic 15 · Democratic/Working Families 1 · Republican 3 · Republican/Conservative 6 · Republican/Conservative/Independence 2 · Republican/Conservative/Independence/Libertarian 1

NameRolePartyChamberDistrict
Amy PaulinPrimary sponsorDemocraticHouse88
George AlvarezCo-sponsorDemocraticHouse78
Joe AngelinoCo-sponsorRepublican/Conservative/IndependenceHouse121
Lester ChangCo-sponsorRepublican/ConservativeHouse49
William ColtonCo-sponsorDemocraticHouse47
Joe DeStefanoCo-sponsorRepublican/ConservativeHouse3
Erik DilanCo-sponsorDemocraticHouse54
Jeffrey DinowitzCo-sponsorDemocraticHouse81
Michael DursoCo-sponsorRepublican/Conservative/Independence/LibertarianHouse9
Judy GriffinCo-sponsorDemocraticHouse21
Rebecca KassayCo-sponsorDemocraticHouse4
John LemondesCo-sponsorRepublican/Conservative/IndependenceHouse126
Nikki LucasCo-sponsorDemocraticHouse60
Brian ManktelowCo-sponsorRepublicanHouse130
John McDonaldCo-sponsorDemocraticHouse108
John MikulinCo-sponsorRepublicanHouse17
Angelo MorinelloCo-sponsorRepublicanHouse145
Danny NorberCo-sponsorRepublican/ConservativeHouse16
Misha NovakhovCo-sponsorRepublican/ConservativeHouse45
Steve OtisCo-sponsorDemocraticHouse91
Sam PirozzoloCo-sponsorRepublican/ConservativeHouse63
Linda RosenthalCo-sponsorDemocraticHouse67
Nader SayeghCo-sponsorDemocraticHouse90
Joe SempolinskiCo-sponsorRepublican/ConservativeHouse148
MaryJane ShimskyCo-sponsorDemocratic/Working FamiliesHouse92
Al StirpeCo-sponsorDemocraticHouse127
David WeprinCo-sponsorDemocraticHouse24
Aron WiederCo-sponsorDemocraticHouse97

“Support” is shown only as formal sponsorship recorded by the legislature. Roll-call votes are available on the official bill page.

Recent official actions

  1. SUBSTITUTED BY S1287B
  2. AMENDED ON THIRD READING 1296B
  3. ORDERED TO THIRD READING CAL.47
  4. SUBSTITUTED BY S1287A
  5. ORDERED TO THIRD READING RULES CAL.291
  6. RULES REPORT CAL.291
  7. REPORTED
  8. REPORTED REFERRED TO RULES
  9. REPORTED REFERRED TO WAYS AND MEANS
  10. PRINT NUMBER 1296A
  11. AMEND AND RECOMMIT TO HEALTH
  12. REFERRED TO HEALTH

Sources

  1. Open States / Plural (data from the official legislature website)
  2. Official legislature source