HB 1521: Consumer genetic testing providers.

Official summary

Abstract published by the legislature (via Open States). Text as published by the legislature; reproduced verbatim.

Provides that a person may not discriminate against an individual on the basis of the individual's solicitation and use of consumer genetic testing services or on the basis of the results of genetic testing performed by a provider of consumer genetic testing services (provider). Requires a provider to disclose specified information to an individual who submits biological material to the provider for genetic testing. Prohibits a provider that performs, or causes to be performed, genetic testing on an individual's biological material from: (1) taking specified actions with regard to: (A) the biological material; or (B) data resulting from genetic testing performed on the biological material; unless the provider has solicited and received the individual's consent to the action; or (2) providing data, other than deidentified data, resulting from genetic testing performed on the individual's biological material to: (A) an insurer; (B) a business that provides information or data to insurers for the purposes of underwriting or rating of risks; or (C) the individual's employer. Imposes requirements on a provider with respect to: (1) controlling access to an individual's biological material and data; (2) complying with the individual's revocation of consent with regard to the individual's biological material and data; and (3) marketing or advertising sent to the individual as a result of the individual's solicitation and use of the provider's genetic testing services or use of a website or other remote or virtual service associated with the provider's genetic testing services. Provides that a provider may not charge a fee for the provision of biological material or data resulting from genetic testing performed on biological material: (1) to a law enforcement agency on the basis of a search warrant; or (2) as required by a court order; that is more than the provider's actual cost of providing the material or data. Provides for enforcement of the bill's provisions by the attorney general.

Sponsors

Sponsors by party (alphabetical): Democratic 3 · Republican 6

“Support” is shown only as formal sponsorship recorded by the legislature. Roll-call votes are available on the official bill page.

Recent official actions

1. May 6, 2025Public Law 233
2. May 6, 2025Signed by the Governor
3. April 29, 2025Signed by the President of the Senate
4. April 24, 2025Signed by the President Pro Tempore
5. April 24, 2025Signed by the Speaker
6. April 23, 2025House reconsidered dissent and concurred with Senate amendments; Roll Call 529: yeas 92, nays 0
7. April 23, 2025Motion to concur filed
8. April 15, 2025House conferees appointed: Pierce K and Miller K
9. April 15, 2025House advisors appointed: Morris, Commons and Dant Chesser
10. April 14, 2025Senate advisors appointed: Ford J.D., Buchanan and Koch
11. April 14, 2025Senate conferees appointed: Johnson T and Hunley
12. April 14, 2025Motion to dissent filed

Showing 12 most recent of 27 actions. Full history