Skip to main content
Independent and nonpartisan. SaveYourState is a civic information resource. It is not a government website and is not affiliated with any government agency, party, or campaign.

California · 2025–26 Regular Session · Senate Bill

SB 1047: Neurodegenerative disease registry program.

Enacted Official data

  1. Introduced
  2. In committee
  3. Passed one chamber
  4. Passed both chambers
  5. Enacted

Last official action: ·Record last updated:

Plain-language summary

SB 1047 is a senate bill introduced in the California Senate on February 12, 2026. According to its official title, it concerns: Neurodegenerative disease registry program. Primary sponsor: Roger Niello (R), Benjamin Allen (D). It lists 7 additional sponsors. Most recent recorded action (September 30, 2026): Chaptered by Secretary of State. Chapter 1000, Statutes of 2026.

Generated automatically from the official title, sponsor list, and status record only. It does not characterize the bill’s purpose or effects. How summaries are written

Official summary

Legislative Counsel’s Digest (official, as of the latest version). Written by nonpartisan legislative staff; reproduced verbatim.

Existing law, until January 1, 2028, and to the extent funds are made available for these purposes, requires the State Department of Public Health to establish a system for the collection of information determining the incidence and prevalence of neurodegenerative diseases, including, but not limited to, amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. Existing law requires a hospital, facility, physician and surgeon, or other health care provider diagnosing or providing treatment to a patient for a neurodegenerative disease to report each case of a neurodegenerative disease to the department, as prescribed. Existing law requires the department to designate the specified neurodegenerative diseases required to be reported in the state or any part of the state. Existing law specifies that for this purpose, “neurodegenerative disease” may include, but need not be limited to, Alzheimer’s disease, multiple sclerosis, and Huntington’s disease.

This bill would require the department to establish a system for the collection of information determining the incidence and prevalence of frontotemporal degeneration (FTD). This bill would specify that “neurodegenerative disease” may also include other dementias. The bill would extend the requirements of these provisions until January 1, 2032.

Sponsors

Sponsors by party (alphabetical): Democratic 2 · Republican 7

NameRolePartyChamberDistrict
Roger NielloPrimary sponsorRepublicanSenate6
Benjamin AllenPrimary sponsorDemocraticSenate24
Marie Alvarado-GilCo-sponsorRepublicanSenate4
Rosilicie Ochoa BoghCo-sponsorRepublicanSenate19
Josh HooverCo-sponsorRepublicanAssembly7
Jacqui IrwinCo-sponsorDemocraticAssembly42
Kelly SeyartoCo-sponsorRepublicanSenate32
David TangipaCo-sponsorRepublicanAssembly8
Suzette Martinez ValladaresCo-sponsorRepublicanSenate23

“Support” is shown only as formal sponsorship recorded by the legislature. Roll-call votes are available on the official bill page.

Recent official actions

  1. Chaptered by Secretary of State. Chapter 1000, Statutes of 2026.
  2. Chaptered by Secretary of State. Chapter 1000, Statutes of 2026.
  3. Approved by the Governor.
  4. Approved by the Governor.
  5. Enrolled and presented to the Governor at 3 p.m.
  6. Enrolled and presented to the Governor at 3 p.m.
  7. Assembly amendments concurred in. (Ayes 40. Noes 0. Page 5987.) Ordered to engrossing and enrolling.
  8. Assembly amendments concurred in. (Ayes 39. Noes 0.) Ordered to engrossing and enrolling.
  9. Ordered to special consent calendar.
  10. Ordered to special consent calendar.
  11. In Senate. Concurrence in Assembly amendments pending.
  12. In Senate. Concurrence in Assembly amendments pending.

Sources

  1. California Legislative Information — pubinfo database export
  2. Official bill page